Wednesday, December 3, 2008

The beautiful power of v/blogging!

The medium nowadays is v/blogging and the power behind it is just so resounding. I want to spotlight this entry on an amazing DB advocate, a beautiful human being, someone who really cares for humanity and travels all over the world.

Miss Coco, known to all as Tactile The World, YouTube'stactiletheworld and to ours (hers and mine) DB family, Miss Coco Chanel.

She's something I tell you. I have never been so moved, inspired, in awe of something beautiful like I was last night. I cannot lie, fib or embellish. Yes, I stood besides the elevator in the Royal Cheshire Apartments Social Room as the OUSA Christmas social was held.

Lord help me, I know I was blocking the elevator access but I wanted first access to Coco all to myself!! As soon as I felt the air pressure change on my right, I knew the elevator door opened, I looked to my right and there she was!

Misty Kehler brought Coco in and I just beelined right to her, well... more like jumped right in Coco's arms!

I properly introduced myself and Coco introduced Misty to me "This is Misty.." and I ended her sentence as " ... Kehler." Coco was surprised and I signed "I remember Misty Kehler from either Xanga or Wordpress.. one of your blogs. Blogging is so powerful!"

If I can recall.. Misty replied "Yes, wow.. so powerful!" Coco and Misty bid their adieus.

Back to the point of this entry, after a great evening with Miss Coco, I arrived at a realisation. I actually had inspired other people at the CNIB's Christmas social. I admit I was bashful and shy at the comments when others came forward to me and exclaimed to me "You wrote all those words in your blog?!"

I'd reply "Yup, I love blogging, great way to express my feelings." Others would say "Wow, you express with those words!"

Now that I think back about it, a few people at last week's CNIB Christmas party were inspired by my blog. I mentioned to them that I am constantly inspired by everyday people doing everyday actions. Those people inspire me.

My DeafBlind family inspire me with their determination to live life fully. Miss Coco inspires me to advocate for equal rights between DB and sighted/hearing people.

This is how beautiful this medium is, the strong power this is. The tsunami effect within the communities. To call it a ripple effect would not do the beauty of the hard work justification but to call it a tsunami effect absolutely perfects it.

Just for you my dear Miss Coco, Namaste.
90 love
Patty oXoX

Thursday, November 20, 2008

I did a very terrible thing..

I really wish I would learn more about patience.

I did a terrible thing to my husband and I feel awful about it. You see, DH has the best intentions at heart.. always. At the heat of the moment, I know I can bite his head off with a scowl, a snap or a bark.

This time, I did the worst. I yelled at him and hollered "WHAT?!" way before he even was going to say or get my attention. I don't like it, I don't even like me or myself now. I don't like what I see in the mirror. It's ugly.

I can't wait for DH to come home from the store as I need to apologise to him.

Tuesday, November 18, 2008

The real meaning of patience

Patience- "pay-shunce" as pronounced by me. I "Wiki'ed" up the meaning if patience and got this,

Patience (ˈpā-shənz) is the state of endurance under difficult circumstances, which can mean persevering in the face of delay or provocation without becoming annoyed or upset; or exhibiting forbearance when under strain, especially when faced with longer-term difficulties. It is also used to refer to the character trait of being steadfast.


Sometimes I wonder if my patience is being tested these days. My husband, bless his heart, I know I test his patience when I'm whining or being cranky. Chris, what a real gentleman, he listens and encourages me to think positive.

If you recall the last entry, I went through quite a challenging visit at the hospital as I didn't have an intervenor to interpret for me. Chris was able to interpret for me in between us using the pen and paper with the on-call emergency neuro-ophthalmologist at the E.R.



Today I got an email from the ophthalmologist's secretary as the ophthalmologist was away on holidays but wanted to know how I was doing and how everything was going. It is nice to know that the doctors do care about how things are progressing.

I do have an appointment to go to London, ON to see another neuro-ophthalmologist as the visual fields test I had was drastically different than the one I had less than a year ago.

This does teach me a lot about patience. Movies with subtitles are much more appreciated than movies with Closed Captioning because subtitles are much more easier to read than Closed Captioning.

I love my quality time with Chris and our furkids. When we all sit and relax, this is when I do really unwind. We have a standard bed and it is really small for all 4 of us. We all want a king sized bed and this would be amazing for all of us. We could live in our bedroom!

Friday, November 14, 2008

I'm staying here but my eyes and mind's going places!

It's been an overwhelming week safe to say. I've been staying put but my mind & eyes have been going places without my permission and I'm not a happy camper about this.

Trying to deal with a constantly racing mind and diminishing vision is something for me to learn about myself and my patience. I can appreciate how I can tolerate how much I can go as far as I can without showing my frustrations. It's hard, believe me.

Wednesday, I went for my ophthalmologist appointment at 2 pm and I thought it was routine. Check my vision using the Visual Fields test and a couple of simple tests with the student teachers and off I was on my way. Nope, it was totally opposite. Since I failed the visual fields test, my left eye compared to the last test I had, it shows rapid progression of my failing eyesight.

The doctors tried a newer prescription that I was going to have filled but decided to wait out because with my history of diminishing eyesight, I elected to wait. It turned out my decision to wait was best. The newer prescription didn't work for me.

I explained to the ophthalmologist that for the left eye,6 months ago it was like looking through sheer drapery, right now, it is like looking through silk drapery. Just so hard to try to make out who is who. Faces I cannot do, shapes I can if they are white shapes.

The ophthalmologist jotted down on paper with such seriousness on his face, "I am very worried about the high intracranial pressure. We must send you to the hospital for more testings now."

I was puzzled because I normally have an intervenor from the CNIB with me at my appointments. My regular one is on her honeymoon and the substitute replaced her called in sick & tried hard to find a replacement but to no avail. I went ahead without no intervenor.

Hubby and I arrived at St. Mary's Hospital around 4:30 pm. A battery of tests and by 10:30 pm, the doctor wanted to transfer me to another hospital for an MRI. I was way past physically exhausted and now to the point of being emotionally exhausted.

I was praying and hoping to be released first before I was transferred to another hospital because I needed to really sleep in my own bed and get a lot of rest as well. I was medicated already with Ativan and a strong narcotic that just knocked the senses out of me.

Hubby and I got home after 11:30 pm and I just wanted to crawl into bed but before we did, he made us something light to eat so I could have something in my tummy.

I slept until 10 am and was exhausted. The hospital called and informed I had an MRI appointment at the other hospital so I had to phone CNIB to make sure I had an intervenor for this appointment. Safe to say, I slept the whole day and night away.

Today, my CNIB intervenor arrived and drove me to the other hospital for the MRI. I was just still tired, groggy-feeling as well. At the hospital, I had to fill out forms, make sure that I was aware of the MRI machine, I informed the technician that I was going to take Ativan because I'm terribly claustrophobic of small enclosures.

The MRI, is a small and tight enclosure for me to be inside!! Ativan and an injection dye into the IV , 45 minutes long, pretty much I just slept inside the MRI enclosure. Today is just an odd feeling of not being present with the surroundings.

Today is Mosey's Happy Gotcha Day and we went to Bark and Fitz to get him presents. I just wasn't feeling well so Chris did most of the things for me. Bless my family! I don't know what I could have done without my husband and our two furkids!

Hubby did a wonderful thing for me to show how my vision is. Before I used to see (both eyes) it used to be like looking through two toilet paper rolls. Now for me, my left eye has no vision. The right eye is so limited. It is like looking at one toilet paper roll right in the middle of the face.




With this setback and all the hospital testings/visits, I hope there's nothing serious with the high intracranial pressure. All I do know from the ophthalmologists, the optometrists and the doctors I saw in the few days, I have been told to take it easy. I am due to go back to London, ON for the Ivey Eye Institute because this is a very serious concern.

Hugs to you all my dear friends. I have been checking you all on your blogs.

Tactile smile,
Patty oxox

Sunday, November 2, 2008

O'Canada!




You Are Canada



You are a very tolerant person. You appreciate diversity and consider yourself a multiculturalist.

You are also very community oriented. You think it's important to help those around you have a better life.



You're uniquely you. You have been able to resist bad influences and stay true to yourself.

You are usually confident in who you are, but occasionally you have a little inferiority complex.

Sunday, October 26, 2008

Christmas is around the corner!!

Hi friends!

Christmas is around the corner - 59 days exactly! Here's the official countdown.

Wouldn't you know it, I even googled and found Santa Claus' own blog! If the kids aren't listening, sit them by the PC and have them check up Santa Claus!!

I have my own two personal Kitty Claws helping me with Christmas already and boy they are big helps.. NOT! When I'm busy crafting, they're right in my way helping me. Bless their heart, they just want to assist but sneak off with a craft or two to play with!

I have started on Christmas shopping much earlier this year due to financial burdens. I have to admit that this year has been really hard on everyone, not just us but everyone around us financially. Chris and I have decided to do personalised Christmas gifts.

Our families will be receiving personalised gifts as well as store bought. We prefer crafting because that's where the love goes into. We have two more gifts to buy (clothes) and we are all set! It's really interesting to see people at the store buying Halloween decorations when I just can't wait to get out the Christmas decorations! Hubby told me, more like warned me, that he will toss out the Christmas decorations if I put them out before Halloween is over.

It's a tradition in my family that Christmas decorations are up by Nov 1st. Yes, I know it's really early but we just love Christmas very much. Chris and I, being Christians, we firmly believe Christ should be celebrated everyday, not at Christmas time.

(Hubby next to me is griping like Mr Grinch because I'm acting like an immature little girl, ROFL!)

Christmas cooking can be a beautiful time for the family to share. I do grab this time of the year I admit when I see my nieces and nephews. I just grab each and every opportunity I had and have with them. I would do just about any crafting or cooking opportunities with my special nieces and nephews. It was about making memories and creating new memories as well.

Christmas isn't supposed to be about rushing to grab the newest gadgets or fads. It's supposed to be about creating memories, getting together with families, friends and loved ones. Here's a link for easy recipes for children - enjoy!

Christmas crafting doesn't have to be costly. I prefer saving my money when it comes to crafting and you can be very surprised at how easy and cheap beautiful gifts can be when you find things around the house can be transformed into wonderful gifts.

If you have old tshirts laying around, flannel shirts or old pieces of clothing children have outgrown or damaged. Use those and cut them up into long strips. Here in Canada, we use Dollarama. In USA, it is called Dollar Tree. You will find boxes of string lights that are only for a dollar. Grab boxes of those!! You can find them during Halloween times as well, orange string lights. I grabbed several boxes of those at Dollarama (orange string lights and made beautiful festive Thanksgiving lights)

Dollarama and Dollar Tree will carry white or multi coloured string lights. When you cut the long strips of fabric, be sure to tie the strings on the wire. They make beautiful gifts that children can give to their parents, grandparents, aunts/uncles or teachers. It's such a wonderful sense of accomplishment that children can have and feel knowing they made the gifts themselves.

I posted this picture in my last post and you can see what I mean by the string lights.



This kind of craft is wonderful for multi-dexterity as well, it teaches how to use both hands, use their fingers and it is a wonderful lesson in patience, persistence and perseverance. My favourite 3 P's!

Do take care dear ones and I will keep in touch. The cluster migraines have been keeping me away from blogging. Check for me in the next day or two and I have so much to talk about!

Tactile smile with lots of love,
Patty oxox'ies!

Monday, September 22, 2008

Been busy these days!!

Hi friends!!

I've been busy these days making so many crafts, my eyesight also hasn't been with me for the past few weeks as well. I've not been online as much as I used to because the focus is hard on my eyes.

I've been learning Braille and it's very interesting, something that has been coming in handy for me.

I've been going to be early these days which is a big difference for me. I usually hit the hay around 10 pm and wake up around 6 am.

I spend the whole day making crafts, they are usually OOAKs. One of a kinds, sewing, quilting and I have been sewing lavender sachets.



Oh I enjoy sewing lavender sachets for a friend of mine and I acquired her beautiful homegrown lavender. I sewed a personal size sachet for Chris and I to put under our pillow and we just love the healing effects of lavender. They do help with sleeping.



Enjoy the OOAKs and the craft pictures!

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This Saturday I will be doing a Purrfect Scents party and looking forward to seeing people's facial expressions when they smell my products and their hands touching the products as well. My products are meant to be enjoyed by smelling and touching not just by seeing them.

Tactile smile,
Patty oXoX