It's been an overwhelming week safe to say. I've been staying put but my mind & eyes have been going places without my permission and I'm not a happy camper about this.
Trying to deal with a constantly racing mind and diminishing vision is something for me to learn about myself and my patience. I can appreciate how I can tolerate how much I can go as far as I can without showing my frustrations. It's hard, believe me.
Wednesday, I went for my ophthalmologist appointment at 2 pm and I thought it was routine. Check my vision using the Visual Fields test and a couple of simple tests with the student teachers and off I was on my way. Nope, it was totally opposite. Since I failed the visual fields test, my left eye compared to the last test I had, it shows rapid progression of my failing eyesight.
The doctors tried a newer prescription that I was going to have filled but decided to wait out because with my history of diminishing eyesight, I elected to wait. It turned out my decision to wait was best. The newer prescription didn't work for me.
I explained to the ophthalmologist that for the left eye,6 months ago it was like looking through sheer drapery, right now, it is like looking through silk drapery. Just so hard to try to make out who is who. Faces I cannot do, shapes I can if they are white shapes.
The ophthalmologist jotted down on paper with such seriousness on his face, "I am very worried about the high intracranial pressure. We must send you to the hospital for more testings now."
I was puzzled because I normally have an intervenor from the CNIB with me at my appointments. My regular one is on her honeymoon and the substitute replaced her called in sick & tried hard to find a replacement but to no avail. I went ahead without no intervenor.
Hubby and I arrived at St. Mary's Hospital around 4:30 pm. A battery of tests and by 10:30 pm, the doctor wanted to transfer me to another hospital for an MRI. I was way past physically exhausted and now to the point of being emotionally exhausted.
I was praying and hoping to be released first before I was transferred to another hospital because I needed to really sleep in my own bed and get a lot of rest as well. I was medicated already with Ativan and a strong narcotic that just knocked the senses out of me.
Hubby and I got home after 11:30 pm and I just wanted to crawl into bed but before we did, he made us something light to eat so I could have something in my tummy.
I slept until 10 am and was exhausted. The hospital called and informed I had an MRI appointment at the other hospital so I had to phone CNIB to make sure I had an intervenor for this appointment. Safe to say, I slept the whole day and night away.
Today, my CNIB intervenor arrived and drove me to the other hospital for the MRI. I was just still tired, groggy-feeling as well. At the hospital, I had to fill out forms, make sure that I was aware of the MRI machine, I informed the technician that I was going to take Ativan because I'm terribly claustrophobic of small enclosures.
The MRI, is a small and tight enclosure for me to be inside!! Ativan and an injection dye into the IV , 45 minutes long, pretty much I just slept inside the MRI enclosure. Today is just an odd feeling of not being present with the surroundings.
Today is Mosey's Happy Gotcha Day and we went to Bark and Fitz to get him presents. I just wasn't feeling well so Chris did most of the things for me. Bless my family! I don't know what I could have done without my husband and our two furkids!
Hubby did a wonderful thing for me to show how my vision is. Before I used to see (both eyes) it used to be like looking through two toilet paper rolls. Now for me, my left eye has no vision. The right eye is so limited. It is like looking at one toilet paper roll right in the middle of the face.
With this setback and all the hospital testings/visits, I hope there's nothing serious with the high intracranial pressure. All I do know from the ophthalmologists, the optometrists and the doctors I saw in the few days, I have been told to take it easy. I am due to go back to London, ON for the Ivey Eye Institute because this is a very serious concern.
Hugs to you all my dear friends. I have been checking you all on your blogs.
Tactile smile,
Patty oxox
1 comment:
Oh Patty, I'm so sorry. I know all about neuro-opthamologists, (sp?) and thought no one else ever heard of that specialty!
Visual fields tests scare me every time I take them. I'm quite mindful of their "power" because I know what they mean (the results) to the Dr.
I am impressed with your patience even tho you say you have none. You still offer friendship and comfort to others even tho you yourself need it.
I am glad Chris is there for you.
Hugs from you Colorado friend....
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